I'll be leaving on an airplane at the end of March. I'll be going to Washington D.C.
I've been invited to attend SIDS/SUID and Stillbirth-A National Research and Advocacy Symposium. There will be a speaker there who believes that a lot of the research for all of us that has been done up to this point is virtually unusable because of the restrictive participation of the parents. I hope he shakes it all up and they push for more participation of the parents that walk our shoes. As I am sure you can guess, I am beyond excited and can't wait for March to get here!
All in all things are going alright here. I will be attending my support group tonight which will be very good for me. I haven't been in over three months. I am as sick as it is to say looking forward to going. It doesn't make me feel much better but it does make me feel less alone. Those in real life meetings really help!
Hoping the New Year is bringing you all what you hoped for or at the very least bringing you some peace.
7 comments:
That's awesome that you are going. You are so right, we need strong voices to speak for us, to be heard for us. I can't wait to hear about it.
Peace to you too!
Exactly what I needed to hear right now as I sweat bullets about our first meeting this Wed!!
Also - what is the exact name of the research group? SSV is planning to donate 5% of our fundraising efforts to a miscarriage / stillbirth research effort, but a quick google didn't give me any viable candidates. I got lots of results but no foundations.
thanks!
Hi Amy,
First of all, let me express my sorrow and support as you continue to grieve and live with William Henry in your heart, but not your arms.
Next, I am so glad you are invited to the First Candle event in Washington, DC (they are a long standing, well-respected nonprofit and accept and distribute money for research in stillbirth and SIDS www.firstcandle.org). I am one of their supporters and a consultant who will be training Peer Support Parents on the Monday March 23 of the Symposium (it's free and open to parents who are ready and who have time and some healing under their belts...anyone interested?)
And lastly, if I can be of any help or if First Candle can, write to me at sherokeeilse@firstcandle.org. I/we can help you find resources, other good links to support, peer support parent friends, opportunities to give back and more.
Blessings to you, Amy, your family and all who visit your blog.
Sherokee Ilse
Bereaved parent, author of Empty Arms: Coping with Miscarriage, Stillbirth, and Infant Death
www.wintergreenpress.com
I'm so proud of you. So glad to know you, Ames.
that's great that you are going. I will be anxious to hear all about it!
This is fantastic well done. Thanks for your recent support too. xx
Sounds like something I'd like to attend. Glad to hear you're going. Hope you'll tell us all about it. Also hope that this year brings you....well, better. XO.
Post a Comment